EMPOWERING PATIENTS
Enhancing Research through Patient Participation
STANA is committed to upholding the best and promising practices of patient engagement and invites partners, collaborators, researchers, clinicians, patient groups, patients, and other interested parties to do the same.
As a leading patient advocacy organization representing people with smell or taste dysfunction, STANA has access to a broad community of patients. Through its Patient Partner Cohort, STANA has trained and empowered a dedicated group of patients, committed to sharing their lived expertise to advance meaningful change and improve outcomes in chemosensory research. Collaborating with STANA or its patient community can drive innovation and improvement across research, policy, healthcare practice, and other essential areas.
To learn more about STANA's PPC, email info@thestana.org.
The Promising Practices and the design and launch of the PPC were the created as part of a portfolio of projects funded through the Eugene Washington PCORI Engagement Award Program, an initiative of the Patient-Centered Outcomes Research Institute® (PCORI®).The statements and views presented in this work are solely the responsibility of STANA and do not necessarily represent the views of PCORI, its Board of Governors or Methodology Committee.
Read the Complete Guidance
The Promising Practices are summarized above as 9 guidelines, please contact STANA for a full copy of the Promising Practices for Patient Engagement in Participatory Research.
The “patient engagement” STANA advocating is the concept of patients leading or partnering in efforts to shape research and other activities, not the more traditional notion of patients engaged as partners in their own care or as “subjects” in research.