Our vision
A world where taste and smell are valued as essential to health, safety, and wellness
Our Purpose
To Smell the Roses and Taste the Spice of Life
We are a patient advocacy group formed in 2020 to improve the quality-of-life for people with smell and taste disorders since we recognize that the loss of taste or smell can affect health, safety and emotional well-being. We seek to expand research, education and treatments for people living in North America who are experiencing the invisible loss of these senses.
Our Mission
Our mission is to provide a voice for people with smell and taste disorders through education and public awareness. We advocate for funding for research on smell taste disorders.
We collaborate with individuals living with these disorders, healthcare professionals, and institutions to provide evidence-based education, resources, and networking opportunities. We also partner with organizations around the world who are aligned with our vision to broaden our outreach.
Our Values
- Patient-Led and Patient-Focused: We place the patient experience at the forefront of our work.
- Compassionate: We listen with empathy and shared understanding to strive to be thoughtful advocates.
- Collaborative: We work with partners who share the same commitment to empower patients, researchers, and healthcare providers.
- Transparent: We aim to ensure that information we share is reliable and evidence based.