Our vision
A world where taste and smell are valued as essential to health, safety, and wellness
Our Purpose
To Smell the Roses and Taste the Spice of Life
We are a patient advocacy group formed in 2020 to improve the quality-of-life for people with smell and taste disorders since we recognize that the loss of taste or smell can affect health, safety and emotional well-being. We seek to expand research, education and treatments for people living in North America who are experiencing the invisible loss of these senses.
Our Mission
We seek to:
- Serve as a voice for people with smell and taste disorders through education and public awareness,
- Collaborate with individuals living with these disorders, healthcare professionals, and institutions to provide evidence-based education, resources, and networking opportunities,
- Advocate for funding and expansion of research on smell and taste disorders,
- Share the patient-lived experience with all stakeholders,
- Promote effective and accessible diagnostic and treatment options,
- Partner with organizations around the world who are aligned with our vision to broaden our outreach.
Our Values
- Patient-Led and Patient-Focused: We place the patient experience at the forefront of our work.
- Compassionate: We listen with empathy and shared understanding to strive to be thoughtful advocates.
- Collaborative: We work with partners who share the same commitment to empower patients, researchers, and healthcare providers.
- Transparent: We aim to ensure that information we share is reliable and evidence based.