Our April 2022 survey is now closed.
The Smell and Taste Association of North America (STANA) partnered with the Monell Center and Jefferson Health to conduct a survey of people who have experienced smell and/or taste dysfunction.
We received a tremendous response and we are compiling results. The survey was funded by a grant from the Patient-Centered Outcomes Research Institute (PCORI).
With the advent of COVID-19 and the abundance of new cases of smell and taste dysfunction caused by COVID-19, there is an urgent need for patient-centered outcomes research related to these disorders. Furthermore, there is greater awareness and appreciation that patients possess vital information that when gathered and assessed can help enhance care, lead researchers and clinicians to future prevention and treatments, and improve overall quality of life.
The survey results will help STANA, Monell, and Jefferson develop a prioritized research framework that takes into consideration barriers in diagnosis or treatment for smell and taste dysfunction and the impact of smell or taste dysfunction on a variety of everyday experiences.
We thank the more than 6,200 patients, caregivers, and family members affected by smell or taste dysfunction who took time to complete our survey. Your insights and experiences will help direct future research that we hope leads to diagnoses and treatments.